Something about Nothing
Aug. 31st, 2010 02:31 amIt's funny... I actually got back my drive to write in this thing months ago. I'm back to being social. The overwhelming drama of wtfery is becoming much less overwhelming and I've been in a pretty good mood. There's just one problem.
In order to write about life... well... you kind of need to have one.
I've always been that person who did too much. Shan's given me hell about this for longer than I can remember. Hell... my very first character in roleplaying (who was basically me with better hair) had that oh-so-lovely character flaw. I just don't slow down. Ever.
Except, for the past several months, slow is all I've been.
Things are starting to pick up. I started classes last week, beginning the long journey towards getting my masters degree, and I really am excited, especially for the Nonfiction Writing class. I'm thinking Rhetorical Criticism will possibly kill me, but it will be an exciting death, at least. And it's nice to really stretch, mentally. I love teaching. There's no job I'd rather do. But there's a reason that I'm embarrassed to admit I'm an elementary education major in academic circles. Very rarely are we challenged to step up to do real, in depth research and study. It's nice stepping up and proving that, even if this isn't a standard part of my job, I'm capable... and pretty damn good at it. Or, at least, I'm hoping I will be. Otherwise this semester will be rough.
Outside of school, though, there's really not much.
Sure, there's the burning resentment towards my lovely previous district. I'll admit, there are still a few choice gestures that happen when I pass by the school at night, and it will be a long time before I can look back on these past three years in any positive light...but even that's become rather quiet.
I think that will change when I start trying to broaden my network of connections again. Right now I can ignore how much I miss teaching because I have a different focus and nothing is reminding me of what I left behind. Soon, though, I need to step back into the mix. I need to stay involved in the field so I have a chance of being hired next year.
Walking back into a classroom that isn't mine... knowing it'll be at least a year until I have that again?
I'll be honest... I'm scared.
I didn't want to start over. But I guess that's the name of the game. The hand was dealt. Now I've just got to play along as best I can.
In order to write about life... well... you kind of need to have one.
I've always been that person who did too much. Shan's given me hell about this for longer than I can remember. Hell... my very first character in roleplaying (who was basically me with better hair) had that oh-so-lovely character flaw. I just don't slow down. Ever.
Except, for the past several months, slow is all I've been.
Things are starting to pick up. I started classes last week, beginning the long journey towards getting my masters degree, and I really am excited, especially for the Nonfiction Writing class. I'm thinking Rhetorical Criticism will possibly kill me, but it will be an exciting death, at least. And it's nice to really stretch, mentally. I love teaching. There's no job I'd rather do. But there's a reason that I'm embarrassed to admit I'm an elementary education major in academic circles. Very rarely are we challenged to step up to do real, in depth research and study. It's nice stepping up and proving that, even if this isn't a standard part of my job, I'm capable... and pretty damn good at it. Or, at least, I'm hoping I will be. Otherwise this semester will be rough.
Outside of school, though, there's really not much.
Sure, there's the burning resentment towards my lovely previous district. I'll admit, there are still a few choice gestures that happen when I pass by the school at night, and it will be a long time before I can look back on these past three years in any positive light...but even that's become rather quiet.
I think that will change when I start trying to broaden my network of connections again. Right now I can ignore how much I miss teaching because I have a different focus and nothing is reminding me of what I left behind. Soon, though, I need to step back into the mix. I need to stay involved in the field so I have a chance of being hired next year.
Walking back into a classroom that isn't mine... knowing it'll be at least a year until I have that again?
I'll be honest... I'm scared.
I didn't want to start over. But I guess that's the name of the game. The hand was dealt. Now I've just got to play along as best I can.
Jingle Bell Rock
Dec. 22nd, 2009 10:14 pmIt's been awhile since I updated, but now seems like a good time to remedy that fact.
Overall, things have been very good. Friday was my last day of school and, with that realization, it's as if someone threw a switch in my mind from "life sucks" to "everything is grand!" It only got better with the party on Saturday. I've missed people and fun and parties!
In many ways, I'm adjusting to a new "normal," but it's still nice to get away from this new reality... this cancer-centric lifestyle... and just be that person I was before. Or maybe that isn't really right either. I don't know that I can ever be that person again. But at least someone who isn't defined by a disease. Who has more going for them than surviving one of the most hellish "treatments" available.
I sang. I ate. I drank (a liiiiittle too much). I laughed. I spent time with the most amazing people I know. And that makes such a difference.
Monday meant returning to my "new normal." I'm beginning radiation earlier than I expected (next week) and, with this new round of treatments, I'm experiencing a whole new wave of...something? Fear. Frustration. Resignation? I don't want to deal with burns and fatigue and scars and hospitals. I want to move past this. I want to relax. But this is part of the process. This is the step I need to take so that, someday, I can put this behind me.
So I'll try and be thankful for the little things. I'm thankful for the ridiculous fuzz that is my new hair. I'm grateful for returning hormones (even if they make things tricky). I'm grateful for - who'd have guessed it - the cold (I'm stuck with marks on my skin for the next 8 weeks so they can be accurate with the radiation... so I'm glad it's not midriff or bikini weather). I'm grateful for the roommates who make my days so much more bearable. My best friend and her loving family who remind me of how lucky I truly am. My own family for their help and encouragement.
And I'm grateful for the simple blessing of having another day. Another day to get better. Another day to beat this. Because this will end. This too shall pass. And I'll be able to look back and know that nothing is going to get me down. I have too much holding me up.
Aaand... now I'm getting moody and teary again. Silly hormones. They are such a nuisance when they start working again.
Overall, things have been very good. Friday was my last day of school and, with that realization, it's as if someone threw a switch in my mind from "life sucks" to "everything is grand!" It only got better with the party on Saturday. I've missed people and fun and parties!
In many ways, I'm adjusting to a new "normal," but it's still nice to get away from this new reality... this cancer-centric lifestyle... and just be that person I was before. Or maybe that isn't really right either. I don't know that I can ever be that person again. But at least someone who isn't defined by a disease. Who has more going for them than surviving one of the most hellish "treatments" available.
I sang. I ate. I drank (a liiiiittle too much). I laughed. I spent time with the most amazing people I know. And that makes such a difference.
Monday meant returning to my "new normal." I'm beginning radiation earlier than I expected (next week) and, with this new round of treatments, I'm experiencing a whole new wave of...something? Fear. Frustration. Resignation? I don't want to deal with burns and fatigue and scars and hospitals. I want to move past this. I want to relax. But this is part of the process. This is the step I need to take so that, someday, I can put this behind me.
So I'll try and be thankful for the little things. I'm thankful for the ridiculous fuzz that is my new hair. I'm grateful for returning hormones (even if they make things tricky). I'm grateful for - who'd have guessed it - the cold (I'm stuck with marks on my skin for the next 8 weeks so they can be accurate with the radiation... so I'm glad it's not midriff or bikini weather). I'm grateful for the roommates who make my days so much more bearable. My best friend and her loving family who remind me of how lucky I truly am. My own family for their help and encouragement.
And I'm grateful for the simple blessing of having another day. Another day to get better. Another day to beat this. Because this will end. This too shall pass. And I'll be able to look back and know that nothing is going to get me down. I have too much holding me up.
Aaand... now I'm getting moody and teary again. Silly hormones. They are such a nuisance when they start working again.
Small Blessings
Dec. 11th, 2009 01:00 amI'm sick again... a nasty little cold that makes my head cloudy and saps my energy. Oddly enough, I don't mind it so much.
Not that this is fun. I'll be happy when I'm stronger and I can breathe clearly again. But for all that being sick sucks, it's amazing how different this "sick" feels from chemo "sick."
It's nice knowing that, this time, it's no mystery fever. No drug-induced nausea. It's just a cold. Annoying, common place, harmless cold.
I can live with that.
Not that this is fun. I'll be happy when I'm stronger and I can breathe clearly again. But for all that being sick sucks, it's amazing how different this "sick" feels from chemo "sick."
It's nice knowing that, this time, it's no mystery fever. No drug-induced nausea. It's just a cold. Annoying, common place, harmless cold.
I can live with that.
An Emotional Landslide in Physical Terms
Dec. 1st, 2009 07:12 pmIt's been awhile since I updated.
Honestly, I've just been too tired. I'm exhausted, both physically and mentally, and three weeks of unbroken work weeks seems just a bit overwhelming right now.
I'm teetering emotionally. One one hand, I'm weighed down by a thousand worries that won't leave me alone. On the other... there are so many blessings around me.
So this will be a two part journal entry... because both deserve notice.
( The Ugly )
( The Bad )
( The Good )
~~~~~~~~~~~~~~~~~~~~~
Long post... but necessary.
I feel like I'm on a roller coaster and I'm not sure where it's going to end, but I'm hoping it slows down soon. I could really go for a nap.
Honestly, I've just been too tired. I'm exhausted, both physically and mentally, and three weeks of unbroken work weeks seems just a bit overwhelming right now.
I'm teetering emotionally. One one hand, I'm weighed down by a thousand worries that won't leave me alone. On the other... there are so many blessings around me.
So this will be a two part journal entry... because both deserve notice.
( The Ugly )
( The Bad )
( The Good )
~~~~~~~~~~~~~~~~~~~~~
Long post... but necessary.
I feel like I'm on a roller coaster and I'm not sure where it's going to end, but I'm hoping it slows down soon. I could really go for a nap.
Que Sera, Sera
Nov. 16th, 2009 08:21 pmIt's funny... this is my last week of chemo. The last treatment I will ever have to go through. But even though Taxol (this last round of drugs) has been so much easier on me than Adriamycin (the first round) ever was, I'm more tired.
Maybe it's because so much is going on this week. We've got curriculum night tomorrow at the Barnes & Noble. I'm hosting a write-in at the same time. It's the last week of this rotation, which means preparing for a new group of kids on Monday. And then I've got 3 doctors' appointments in the next 4 days, which means sub plans need to be made for all the days I have to take off. Add in NaNoWriMo and it's a pretty full docket.
I'm also tired because, up until now, the focus has been on getting through chemo. I figured, if I could just reach the end, that was enough. And it is. Except, now, I get to see how much my body can recover from the process I've just put it through. I've been just surviving. Now I'm hoping I can get back to normal.
Chemo had all these risks... 1% chance of leukemia. 10% (or hopefully less) chance of damaging my reproductive system beyond repair. Chances of heart problems... of nerve damage... of permanent hair loss. They're all small chances, but they're possible. During chemo, there was no point in worrying about them. It was the safest road, it needed to be done, and worrying about it wouldn't affect the outcome one way or the other.
Now it's time to see how it all turns out. It becomes the waiting game. Wait and see if we got it all. Wait and see if there are any long term complications. Just wait and see.
I suppose it's no wonder I'm tired. I can see now why my doctor was surprised that I was going to continue teaching. I'm glad I did... but God... I'm so ready for Christmas Break.
That said... there's still no point in worrying. What will be will be (Que sera, sera, anyone?). And there's one thing I know for sure...
I have a lot to be thankful for this Thanksgiving.
Maybe it's because so much is going on this week. We've got curriculum night tomorrow at the Barnes & Noble. I'm hosting a write-in at the same time. It's the last week of this rotation, which means preparing for a new group of kids on Monday. And then I've got 3 doctors' appointments in the next 4 days, which means sub plans need to be made for all the days I have to take off. Add in NaNoWriMo and it's a pretty full docket.
I'm also tired because, up until now, the focus has been on getting through chemo. I figured, if I could just reach the end, that was enough. And it is. Except, now, I get to see how much my body can recover from the process I've just put it through. I've been just surviving. Now I'm hoping I can get back to normal.
Chemo had all these risks... 1% chance of leukemia. 10% (or hopefully less) chance of damaging my reproductive system beyond repair. Chances of heart problems... of nerve damage... of permanent hair loss. They're all small chances, but they're possible. During chemo, there was no point in worrying about them. It was the safest road, it needed to be done, and worrying about it wouldn't affect the outcome one way or the other.
Now it's time to see how it all turns out. It becomes the waiting game. Wait and see if we got it all. Wait and see if there are any long term complications. Just wait and see.
I suppose it's no wonder I'm tired. I can see now why my doctor was surprised that I was going to continue teaching. I'm glad I did... but God... I'm so ready for Christmas Break.
That said... there's still no point in worrying. What will be will be (Que sera, sera, anyone?). And there's one thing I know for sure...
I have a lot to be thankful for this Thanksgiving.
Never a Dull Moment
Nov. 6th, 2009 03:30 pmI just woke up from a nap... feeling much better now.
Once again, I'm a medical mystery. I definitely had a fever bungee jumping inside me, but the doctors have no idea why. My white blood cell count was fine and I have no obvious infections and no other symptoms. Just a massively uncomfortable fever.
I was in the hospital for a few hours, but they finally sent me home. Even without answers, they were more worried about me catching something else there (what with everyone rushing in and out with potential Swine Flu and such), so they sent me home with the direction to keep an eye on my temperature and come back if it spiked too high again. It was still lingering when I passed out for a 3 hour nap.
I feel weak, now, but otherwise okay. I'm still gonna keep an eye on everything, but I'm starting to feel normal.
Really? This was not the way I wanted to start my weekend.
Once again, I'm a medical mystery. I definitely had a fever bungee jumping inside me, but the doctors have no idea why. My white blood cell count was fine and I have no obvious infections and no other symptoms. Just a massively uncomfortable fever.
I was in the hospital for a few hours, but they finally sent me home. Even without answers, they were more worried about me catching something else there (what with everyone rushing in and out with potential Swine Flu and such), so they sent me home with the direction to keep an eye on my temperature and come back if it spiked too high again. It was still lingering when I passed out for a 3 hour nap.
I feel weak, now, but otherwise okay. I'm still gonna keep an eye on everything, but I'm starting to feel normal.
Really? This was not the way I wanted to start my weekend.
The Princess and the Pea
Oct. 26th, 2009 08:49 pmMandie: I never understood the story of the Princess and the Pea. I always thought she was a horrible guest. I mean, she complains about how terribly she slept and how she tossed and turned all night on her first night there? If I stayed with royalty and wanted to marry this guy, I wouldn't dare complain. "How did I sleep? Awesome!"
Jen: Oh yeah... and these bruises? They're nothing, seriously.
Mandie: By the way, have I complimented your drapes?
I enjoy the conversations I have with my roommates.
Treatment was pretty good this weekend. Albeit, I had a slight reaction which turned the 4 hour treatment into a 7 1/2 hour treatment, but mostly it was just a long, boring day (Thanks for your patience, Nathan). The pain hit right on time, about 24 hours afterwards, but still manageable. Today the ache is mostly centered in my knees and ankles. It should pass in a day or two.
My NaNo group is going really well. I reached 26 kids today and they started sharing their stories with the group. Writing begins in 5 days, I have the basic outline of a plot, and my writing group just held a fantastic collage-o-rama event on Saturday. My roommates might have me contemplating my ancientness (:P Corinne), but life is good. I'm still working towards great (and possibly "well rested"), but this will do for now. For now, this is enough.
Jen: Oh yeah... and these bruises? They're nothing, seriously.
Mandie: By the way, have I complimented your drapes?
I enjoy the conversations I have with my roommates.
Treatment was pretty good this weekend. Albeit, I had a slight reaction which turned the 4 hour treatment into a 7 1/2 hour treatment, but mostly it was just a long, boring day (Thanks for your patience, Nathan). The pain hit right on time, about 24 hours afterwards, but still manageable. Today the ache is mostly centered in my knees and ankles. It should pass in a day or two.
My NaNo group is going really well. I reached 26 kids today and they started sharing their stories with the group. Writing begins in 5 days, I have the basic outline of a plot, and my writing group just held a fantastic collage-o-rama event on Saturday. My roommates might have me contemplating my ancientness (:P Corinne), but life is good. I'm still working towards great (and possibly "well rested"), but this will do for now. For now, this is enough.
Feeling Hot, Hot, Hot...
Oct. 21st, 2009 04:16 pmChemo has a fun, new side effect for me... Hot flashes! That's right, I'm now experiencing (at 24) that coveted physiological response that is normally reserved for women over 45. Go me!
Actually, in its own way, it's kinda helpful. My school is always freezing. Most of the people in my hallway don jackets about half way through the day, just trying to stay warm. Me? I'm standing under the air vent (which is still blasting cold air, despite the fact that it's mid October), trying to cool down.
Of course, it's less fun at night when it wakes me up, but that's another matter.
Another treatment starts tomorrow. This time I'll take my meds as prescribed and we'll hopefully avoid all the wild and crazy reactions. Just think... as of this time tomorrow, I'll only have two more treatments to go. I can be excited for that. :D
I'm trying to make a decision. My NaNo kids are starting to ask why I'm gone so much. Some of them had me last year or last rotation, when I was absent a lot, so they already remember this as an odd trend. They're also more connected to me than my normal classes because we spend so much time writing after school. I'm not sure whether I should tell them the reason or not. I've kept it quiet with my normal classes because it'll just add complications... lots of questions and attention and it'll need to be repeated when I get the next group of kids. But my writers are a different bunch. We'll be working together for the next 3 months (well, 2 1/2). Should I let them know what's going on, or keep hedging? I'm not sure.
Actually, in its own way, it's kinda helpful. My school is always freezing. Most of the people in my hallway don jackets about half way through the day, just trying to stay warm. Me? I'm standing under the air vent (which is still blasting cold air, despite the fact that it's mid October), trying to cool down.
Of course, it's less fun at night when it wakes me up, but that's another matter.
Another treatment starts tomorrow. This time I'll take my meds as prescribed and we'll hopefully avoid all the wild and crazy reactions. Just think... as of this time tomorrow, I'll only have two more treatments to go. I can be excited for that. :D
I'm trying to make a decision. My NaNo kids are starting to ask why I'm gone so much. Some of them had me last year or last rotation, when I was absent a lot, so they already remember this as an odd trend. They're also more connected to me than my normal classes because we spend so much time writing after school. I'm not sure whether I should tell them the reason or not. I've kept it quiet with my normal classes because it'll just add complications... lots of questions and attention and it'll need to be repeated when I get the next group of kids. But my writers are a different bunch. We'll be working together for the next 3 months (well, 2 1/2). Should I let them know what's going on, or keep hedging? I'm not sure.
Pink Ribbons, Blue Tears
Oct. 16th, 2009 05:11 pmEveryone wants so badly to help. To support. The love and friendship has been an incredible boost, especially on those really down days.
But... sometimes... what's done with the best of intentions still really hurts.
I don't know what my principal was thinking. Maybe he was doing it for me and E. (our janitor who is going through the same situation). Maybe he has other friends and family dealing and just wanted to support the cause in general. Maybe he's trying to boost his career. Maybe he just thought it'd be a really nifty idea. But, whatever his reason, my principal decided that our entire staff was going to buy pink Troy shirts with little pink ribbons in the O and wear them, en mass, today to show a united front for breast cancer awareness month.
Don't ask me why this upsets me so much. I'm not really sure. I like the color pink. If I was healthy I would buy and wear a shirt with no hesitation. It was only $6. That's not even a nuisance. It's a great cause to support and, you'd think, I'd be the biggest proponent.
Only, I spend my days now surrounded by cancer. I've got the bald head. The mouth sores (well, not any more, thank God). The fatigue. The muscle pain. I live with it. I don't want to wear it. Even if it's all I think about or talk about, I cherish those moments when I can hide away and just be Jen. Normal, everyday Jen. Roommate Jen. Teacher Jen. Me.
I told him yesterday that I didn't feel comfortable wearing it, and he said that was fine (what else would he say, really?), but I wish to God I'd just bought the damn thing. Or worn another pink shirt. Because I forgot that this was middle school and the students would bring up questions like "How come you aren't wearing a pink shirt for breast-cancer, Ms. Justice?"
Gee... I don't know, kids. Ask me some other time.
The first time a kid asked, I sincerely didn't know what to say. I could have lied. "I forgot it," or even "I don't like the color pink," but it didn't even occur to me. I just stammered... and then tried to avoid the question. The next two times were easier.
Then we had a pep assembly during our last period. The entire gym was filled with pink. Everywhere you looked, pink. I was already feeling spread thin when, at the very end, our principal announced he wanted a nice, pink staff photo after the kids left. It'll be in the yearbook later.
I couldn't take it anymore. I was wearing blue. My wig felt hot and itchy and possibly out of place (probably not, but I'm paranoid about pictures now). I didn't want a picture. I didn't want to be "aware" of breast cancer. I just wanted to get away. So I ran. I booked it back to my room so I could hide before the kids saw that I was crying.
Now I feel like I've made a mess of things. I went back for the stupid photo, but some staff members noticed my nice little break down. Now they feel guilty, which is the LAST thing I wanted to do. Whatever my principal's motivation was, many of these people did this for me. Or for family. Or for E. Their hearts were in the right place. This was an incredibly loving gesture, and I don't want to take away from that as if it wasn't.
I feel selfish and whiny and overemotional. After all, it's just a pink t-shirt.
So why do I still feel like crying, now?
But... sometimes... what's done with the best of intentions still really hurts.
I don't know what my principal was thinking. Maybe he was doing it for me and E. (our janitor who is going through the same situation). Maybe he has other friends and family dealing and just wanted to support the cause in general. Maybe he's trying to boost his career. Maybe he just thought it'd be a really nifty idea. But, whatever his reason, my principal decided that our entire staff was going to buy pink Troy shirts with little pink ribbons in the O and wear them, en mass, today to show a united front for breast cancer awareness month.
Don't ask me why this upsets me so much. I'm not really sure. I like the color pink. If I was healthy I would buy and wear a shirt with no hesitation. It was only $6. That's not even a nuisance. It's a great cause to support and, you'd think, I'd be the biggest proponent.
Only, I spend my days now surrounded by cancer. I've got the bald head. The mouth sores (well, not any more, thank God). The fatigue. The muscle pain. I live with it. I don't want to wear it. Even if it's all I think about or talk about, I cherish those moments when I can hide away and just be Jen. Normal, everyday Jen. Roommate Jen. Teacher Jen. Me.
I told him yesterday that I didn't feel comfortable wearing it, and he said that was fine (what else would he say, really?), but I wish to God I'd just bought the damn thing. Or worn another pink shirt. Because I forgot that this was middle school and the students would bring up questions like "How come you aren't wearing a pink shirt for breast-cancer, Ms. Justice?"
Gee... I don't know, kids. Ask me some other time.
The first time a kid asked, I sincerely didn't know what to say. I could have lied. "I forgot it," or even "I don't like the color pink," but it didn't even occur to me. I just stammered... and then tried to avoid the question. The next two times were easier.
Then we had a pep assembly during our last period. The entire gym was filled with pink. Everywhere you looked, pink. I was already feeling spread thin when, at the very end, our principal announced he wanted a nice, pink staff photo after the kids left. It'll be in the yearbook later.
I couldn't take it anymore. I was wearing blue. My wig felt hot and itchy and possibly out of place (probably not, but I'm paranoid about pictures now). I didn't want a picture. I didn't want to be "aware" of breast cancer. I just wanted to get away. So I ran. I booked it back to my room so I could hide before the kids saw that I was crying.
Now I feel like I've made a mess of things. I went back for the stupid photo, but some staff members noticed my nice little break down. Now they feel guilty, which is the LAST thing I wanted to do. Whatever my principal's motivation was, many of these people did this for me. Or for family. Or for E. Their hearts were in the right place. This was an incredibly loving gesture, and I don't want to take away from that as if it wasn't.
I feel selfish and whiny and overemotional. After all, it's just a pink t-shirt.
So why do I still feel like crying, now?
If I Could Trade it All
Oct. 8th, 2009 11:21 pmThis weekend was fantastic! As upset as I was about having to skip a treatment, it was nice to have a week with no symptoms. No mouth sores. No sickness. Plenty of energy. I took full advantage of it.
Saturday was a trip out to Naperville for food and fun with the roomies. Mandie was fabulous and passed her ridiculously hard English Masters test (with distinction, even) and we felt her genius deserved some celebrating. Then Sunday was a trip out to Willowbrook Ballroom for some Italian food and Swing Dancing.
Now, I've never gone swing dancing in my life, so I was a bit wary... but my partner was a terrific conversationalist and a very good teacher. I had a blast, and it seemed he was pretty happy too, even though I did fall on my butt once. Me and my two left feet. But, still, I had a great time.
This week, with the new rotation of kids, has gone fairly well. A few of my classes are squirrely and my administrators turned our schedules on their heads for yet another round of testing, but I made it through.
Then today happened.
Seriously, my luck (or lack thereof) is ridiculous. I went in for chemo. Everything looked good, so we started my first treatment of taxol. The nurse was in the middle of asking me questions when, suddenly, I didn't feel so good. I told her, and she immediately ran off to get a basin... not realizing that it wasn't just nausea. Fractions of a second later I started feeling dull muscle pain across my shoulders, followed by rapid tightening in my chest. It was like someone was sitting on me. I started calling out to her "Trouble breathing. Trouble breathing!" until she ran to get a nurse.
Needless to say, they immediately stopped treatment. Turns out the Decadron that they prescribed me last week was to help prevent such reactions as these. Now, this is partially my fault, as I should have filled the prescription and taken it last night as directed. However, I was under the impression that the steroid was another anti-nausea med, since that's what I used it for during the Adriamycin. I knew they were giving me a much larger dose this time, but they also said they were doing everything they could to tamp down my nausea for this round, so I had no reason to think otherwise. When I realized my mistake, I figured I would just fill the prescription today, take it later, and it would be fine. Once again, failure to communicate caused another complication.
I really wish things would stop going wrong. I really wish my doctors would stop witholding information and keep me abreast of what's going on with my treatments and what the various drugs are needed for. And I really wish that this particular mess wasn't my fault, because I SHOULD have filled that prescription earlier. I know that. But with everything else going on, I didn't make it a priority like I should have and this is the end result. I'm frustrated with my doctors and with myself and I'm tired of it all.
We're trying again tomorrow. I'm scared the decadron won't work and I'll have another reaction. Then I don't know what we'll do... but all we can do is try. I'm following my directions now and trying to hope for the best. I just need hope to stop being so scarce.
"This isn't the Matrix. Don't tell me to choose between the blue pill and the red pill without telling me what they do."
Saturday was a trip out to Naperville for food and fun with the roomies. Mandie was fabulous and passed her ridiculously hard English Masters test (with distinction, even) and we felt her genius deserved some celebrating. Then Sunday was a trip out to Willowbrook Ballroom for some Italian food and Swing Dancing.
Now, I've never gone swing dancing in my life, so I was a bit wary... but my partner was a terrific conversationalist and a very good teacher. I had a blast, and it seemed he was pretty happy too, even though I did fall on my butt once. Me and my two left feet. But, still, I had a great time.
This week, with the new rotation of kids, has gone fairly well. A few of my classes are squirrely and my administrators turned our schedules on their heads for yet another round of testing, but I made it through.
Then today happened.
Seriously, my luck (or lack thereof) is ridiculous. I went in for chemo. Everything looked good, so we started my first treatment of taxol. The nurse was in the middle of asking me questions when, suddenly, I didn't feel so good. I told her, and she immediately ran off to get a basin... not realizing that it wasn't just nausea. Fractions of a second later I started feeling dull muscle pain across my shoulders, followed by rapid tightening in my chest. It was like someone was sitting on me. I started calling out to her "Trouble breathing. Trouble breathing!" until she ran to get a nurse.
Needless to say, they immediately stopped treatment. Turns out the Decadron that they prescribed me last week was to help prevent such reactions as these. Now, this is partially my fault, as I should have filled the prescription and taken it last night as directed. However, I was under the impression that the steroid was another anti-nausea med, since that's what I used it for during the Adriamycin. I knew they were giving me a much larger dose this time, but they also said they were doing everything they could to tamp down my nausea for this round, so I had no reason to think otherwise. When I realized my mistake, I figured I would just fill the prescription today, take it later, and it would be fine. Once again, failure to communicate caused another complication.
I really wish things would stop going wrong. I really wish my doctors would stop witholding information and keep me abreast of what's going on with my treatments and what the various drugs are needed for. And I really wish that this particular mess wasn't my fault, because I SHOULD have filled that prescription earlier. I know that. But with everything else going on, I didn't make it a priority like I should have and this is the end result. I'm frustrated with my doctors and with myself and I'm tired of it all.
We're trying again tomorrow. I'm scared the decadron won't work and I'll have another reaction. Then I don't know what we'll do... but all we can do is try. I'm following my directions now and trying to hope for the best. I just need hope to stop being so scarce.
"This isn't the Matrix. Don't tell me to choose between the blue pill and the red pill without telling me what they do."
You know you saw this coming.
Oct. 2nd, 2009 11:57 pmThursday was a treatment day and, once again, we have complications.
Really, is anyone surprised?
The deal is this: There was no treatment. The last adriamycin shot caused mouth sores beyond belief... They lasted for almost the entire two weeks after the shot. They were still there yesterday, which is why my doctor put everything on hold. Apparently the taxol can cause mouth sores as well. Or, at least, they'd make my current sores stick around for a very long time. So, yeah, not fun.
I was understandably upset by this turn of events. Dr. Cobleigh seemed surprised by my lack of happiness over the delay, but came up with an alternative. Rather than doing the 12 shots of taxol over the next 12 weeks, she's going to give me dose dense taxol (basically, a double dose), 4 times, every other week. The upside? I don't have to go to the hospital as often, I'll be able to be at school more consistently, I'll get good weeks inbetween treatment weeks, and (woohoo!) I'll actually be done with my treatment earlier than I expected (halfway through November instead of halfway through December).
The downside? The higher dose means I'm much more likely to experience side effects (nausea, numbness/tingling in my hands, muscle pain, fatigue). I'll also have to take two days off of work each treatment (they'll all be on Thursdays, now. No switching to Fridays). This means changing my sub schedule and changing the details for my rides. And, for all that this change seems like a good thing, I'm wary of it. I guess I had my mind set one way, and I feel like my equilibrium is a little off, switching gears now. So instead of jumping for joy, I'm not sure what to think.
That said, I am enjoying my symptom free weekend. The mouth sores are almost completely healed (this means I can eat again!!!), I'm going to have a great Saturday night with my roommates celebrating Mandie's fantastic test taking abilities, and then I'm going swing dancing on Sunday. I start a new rotation on Monday, which is somewhat stressful, but it'll be a short week, followed by a long weekend, so it'll work out.
I'll make this work.
(PS: Apollo, you had said you could take me to treatment next week on Friday, but now the treatment will be at 11am on Thursday. It means leaving from my house at about 9:45/10ish. Can you still take me, or should I find an alternative? Sorry for the last minute change. :-/)
Really, is anyone surprised?
The deal is this: There was no treatment. The last adriamycin shot caused mouth sores beyond belief... They lasted for almost the entire two weeks after the shot. They were still there yesterday, which is why my doctor put everything on hold. Apparently the taxol can cause mouth sores as well. Or, at least, they'd make my current sores stick around for a very long time. So, yeah, not fun.
I was understandably upset by this turn of events. Dr. Cobleigh seemed surprised by my lack of happiness over the delay, but came up with an alternative. Rather than doing the 12 shots of taxol over the next 12 weeks, she's going to give me dose dense taxol (basically, a double dose), 4 times, every other week. The upside? I don't have to go to the hospital as often, I'll be able to be at school more consistently, I'll get good weeks inbetween treatment weeks, and (woohoo!) I'll actually be done with my treatment earlier than I expected (halfway through November instead of halfway through December).
The downside? The higher dose means I'm much more likely to experience side effects (nausea, numbness/tingling in my hands, muscle pain, fatigue). I'll also have to take two days off of work each treatment (they'll all be on Thursdays, now. No switching to Fridays). This means changing my sub schedule and changing the details for my rides. And, for all that this change seems like a good thing, I'm wary of it. I guess I had my mind set one way, and I feel like my equilibrium is a little off, switching gears now. So instead of jumping for joy, I'm not sure what to think.
That said, I am enjoying my symptom free weekend. The mouth sores are almost completely healed (this means I can eat again!!!), I'm going to have a great Saturday night with my roommates celebrating Mandie's fantastic test taking abilities, and then I'm going swing dancing on Sunday. I start a new rotation on Monday, which is somewhat stressful, but it'll be a short week, followed by a long weekend, so it'll work out.
I'll make this work.
(PS: Apollo, you had said you could take me to treatment next week on Friday, but now the treatment will be at 11am on Thursday. It means leaving from my house at about 9:45/10ish. Can you still take me, or should I find an alternative? Sorry for the last minute change. :-/)
Could this be... relief?
Sep. 19th, 2009 08:11 amIt's two days after treatment. I woke up early (my body just won't let me sleep very long anymore), and I'm a bit queasy... but, honestly, this is the best I've felt so soon after an Adriamycin shot. Hands down. I was even amazed yesterday. The day after treatment I was able to survive the 3 hour drive to Champaign (thanks to my wonderful mother driving), a wedding rehearsal, and I even ate half of the rehearsal dinner (well, okay... maybe closer to a quarter), all without feeling miserable. My energy level is low, but I'll take that over extreme nausea any day.
Again, I'm a bit irked with my doctors. The only thing that's changed with this treatment is that I insisted on them giving me Zofran for my nausea. They wouldn't do it last time because they swore up and down that it wouldn't help me. This time they gave in, but told me it would be useless until the fourth day after treatment. Apparently the Alloxy in my cocktail is the same drug as the Zofran, and it stays in my system for 3 days. They figured it wouldn't help to give me the same drug again if it wasn't working the first time.
What do you know? I take a Zofran the morning after... just in case it can help... and it's the best I've felt in ages. Maybe it's a placebo effect. Maybe the Alloxy just needed an extra boost. But, either way, I'm wishing they'd given this to me earlier, after we learned the Compazine wasn't going to work. It would have made the last two treatments so much easier. Le sigh.
Well, what's done is done. Either way, this was my final Adriamycin shot. That, all in its own right, is a reason to celebrate. Maybe I'll be able to survive this wedding after all. :)
Again, I'm a bit irked with my doctors. The only thing that's changed with this treatment is that I insisted on them giving me Zofran for my nausea. They wouldn't do it last time because they swore up and down that it wouldn't help me. This time they gave in, but told me it would be useless until the fourth day after treatment. Apparently the Alloxy in my cocktail is the same drug as the Zofran, and it stays in my system for 3 days. They figured it wouldn't help to give me the same drug again if it wasn't working the first time.
What do you know? I take a Zofran the morning after... just in case it can help... and it's the best I've felt in ages. Maybe it's a placebo effect. Maybe the Alloxy just needed an extra boost. But, either way, I'm wishing they'd given this to me earlier, after we learned the Compazine wasn't going to work. It would have made the last two treatments so much easier. Le sigh.
Well, what's done is done. Either way, this was my final Adriamycin shot. That, all in its own right, is a reason to celebrate. Maybe I'll be able to survive this wedding after all. :)
One Quarter Down
Sep. 16th, 2009 03:32 pm"Ms. Justice, you are totally rockin' that outfit."
This makes my day. I like it more than the last comment a student made about my appearance.
Prepping for two days of substitutes is hell, but I'm now officially on my "weekend." Albeit, I have a treatment tomorrow and will likely spend the next several days feeling very sick, but at least I have no work to worry about until Monday.
Charli's wedding is on Sunday and I'm standing up as a bridesmaid. It's going to be difficult... but I can do this. For her, I can do this. And, to make it easier, my doctors are giving me a small prescription of extra anti-nausea meds. They said they won't help much (if at all) during the first 3 days because it's one of the drugs that's in my drug cocktail and more won't really be effective... but it'll help on the subsequent days, and the wedding is day 4. So the day I really need the extra help, I should have it.
I haven't liked myself very much these past few weeks. I've been very negative and super focused on the cancer and the treatments. I get frustrated, because I really want to think about other things. I don't like being defined by this situation, and I don't want to feel like I'm dependent on other people (like boyfriends) to actually be happy. I want to be happy in my own right, and it bothers me that I can't seem to achieve that right now. But I'm still fighting and I'm still surviving and the last of the terrible shots is tomorrow. If nothing else, I will be done with Adriamycin forever after tomorrow and that is a beautiful, beautiful thing.
I can do this. I may not always handle misfortune with grace, but I will handle it. I will come through on the other side and, when I do, I will be smiling.
I promise.
This makes my day. I like it more than the last comment a student made about my appearance.
Prepping for two days of substitutes is hell, but I'm now officially on my "weekend." Albeit, I have a treatment tomorrow and will likely spend the next several days feeling very sick, but at least I have no work to worry about until Monday.
Charli's wedding is on Sunday and I'm standing up as a bridesmaid. It's going to be difficult... but I can do this. For her, I can do this. And, to make it easier, my doctors are giving me a small prescription of extra anti-nausea meds. They said they won't help much (if at all) during the first 3 days because it's one of the drugs that's in my drug cocktail and more won't really be effective... but it'll help on the subsequent days, and the wedding is day 4. So the day I really need the extra help, I should have it.
I haven't liked myself very much these past few weeks. I've been very negative and super focused on the cancer and the treatments. I get frustrated, because I really want to think about other things. I don't like being defined by this situation, and I don't want to feel like I'm dependent on other people (like boyfriends) to actually be happy. I want to be happy in my own right, and it bothers me that I can't seem to achieve that right now. But I'm still fighting and I'm still surviving and the last of the terrible shots is tomorrow. If nothing else, I will be done with Adriamycin forever after tomorrow and that is a beautiful, beautiful thing.
I can do this. I may not always handle misfortune with grace, but I will handle it. I will come through on the other side and, when I do, I will be smiling.
I promise.
My Life as a Movie
Sep. 14th, 2009 06:35 pmI've been trying to be peppy and positive today, but it seems that the best I can manage is bitchy and cynical. If my life was a horror movie this would be great news, as the cheerleaderesque chic always dies a terrible, bloody death... but, really, I was hoping for more of a romantic comedy.
Physical updates are less than happy. I was actually sick. Thankfully, it was/is just a cold and it seems to be clearing up. Of course, it made my day when I walked into the classroom to hear one of my students say "Wow... you look even sicker than last week, Ms. Justice!" Great... Thanks, dear. Just what I wanted to hear. I also seem to have developed mouth sores. Nothing visible, but my tongue feels like I just chewed on a mouthful of razors. Or ate too many kiwis. Same difference. Either way, it's unpleasant and painful and makes eating a chore.
Damned if I'm going to let this ruin my night, though. I just bought some horribly unhealthy fast food (sorry, Dad), and I plan on watching a movie while I rip inappropriate ads out of magazines (for classroom reasons. What were you thinking?). If I feel real crazy, I might even break out the sparkling wine that Corinne bought two days ago.
Physical updates are less than happy. I was actually sick. Thankfully, it was/is just a cold and it seems to be clearing up. Of course, it made my day when I walked into the classroom to hear one of my students say "Wow... you look even sicker than last week, Ms. Justice!" Great... Thanks, dear. Just what I wanted to hear. I also seem to have developed mouth sores. Nothing visible, but my tongue feels like I just chewed on a mouthful of razors. Or ate too many kiwis. Same difference. Either way, it's unpleasant and painful and makes eating a chore.
Damned if I'm going to let this ruin my night, though. I just bought some horribly unhealthy fast food (sorry, Dad), and I plan on watching a movie while I rip inappropriate ads out of magazines (for classroom reasons. What were you thinking?). If I feel real crazy, I might even break out the sparkling wine that Corinne bought two days ago.
I was really hoping that, by now, I'd be able to post some wonderful, upbeat update about how great I'm feeling compared to the last time I wrote here.
If only.
I was almost there. Other than being tired, I was finally starting to approach that "healthy" feeling I've been missing. Then, last night, I got hit with a wave of... something. I feel flu-ish, headachey and sick. My throat is sore and kept me up waaay too late last night and I feel drained and dead today. But other than a little mild congestion (not even enough for me to even really think I have a cold), I don't seem to have any real symptoms. I have no fever. I got sleep (though maybe not enough). I even ate a decent breakfast this morning.
I'm not sure how I could possibly be sick. I wash my hands constantly. Due to this stupid MRSA infection, I've been taking antibiotics and washing with antibacterial, decolonizing soap for a week. Mom provided me with leftovers, so I'm even eating decent meals when I'm not up to cooking. I should be fine. I shouldn't be sick.
Please, dear God, don't let me be sick. -.-
Here's hoping this is just excessive tiredness, or something minor that sleep and a few days' break from work can cure. 'Cause if I don't even get a few days to feel better before my next treatment, that's just plain unfair.
On a plus note, our union is going to try and open a sick-day pool for me to give me a helping hand this semester. I don't need many days (I really tried to minimize the amount of time I'd be out of school), but with the complications I've already had I'm cutting it awfully close. If they can just get me a handful of extra days, I should be set. This could either work for me or against me. The administration could say "A few days? That's nothing! Go for it!" or they could say "A few days? Not serious enough to bother." Guess we just wait and see.
Strangely, despite the extra work it will mean, I'm glad NaNo is soon. Between sickness and work and my social life (or lack there-of), life has just been rather blah lately. Not horrible (there are so many people who have it so much worse) and not great. Just...there. NaNo is like this little island of happiness for me, where I get to have a purpose for a month. Even if I don't reach my goal. Even if I never finish a novel. Even if my job sucks. I get to be a writer, for just a little while.
I look forward to November.
If only.
I was almost there. Other than being tired, I was finally starting to approach that "healthy" feeling I've been missing. Then, last night, I got hit with a wave of... something. I feel flu-ish, headachey and sick. My throat is sore and kept me up waaay too late last night and I feel drained and dead today. But other than a little mild congestion (not even enough for me to even really think I have a cold), I don't seem to have any real symptoms. I have no fever. I got sleep (though maybe not enough). I even ate a decent breakfast this morning.
I'm not sure how I could possibly be sick. I wash my hands constantly. Due to this stupid MRSA infection, I've been taking antibiotics and washing with antibacterial, decolonizing soap for a week. Mom provided me with leftovers, so I'm even eating decent meals when I'm not up to cooking. I should be fine. I shouldn't be sick.
Please, dear God, don't let me be sick. -.-
Here's hoping this is just excessive tiredness, or something minor that sleep and a few days' break from work can cure. 'Cause if I don't even get a few days to feel better before my next treatment, that's just plain unfair.
On a plus note, our union is going to try and open a sick-day pool for me to give me a helping hand this semester. I don't need many days (I really tried to minimize the amount of time I'd be out of school), but with the complications I've already had I'm cutting it awfully close. If they can just get me a handful of extra days, I should be set. This could either work for me or against me. The administration could say "A few days? That's nothing! Go for it!" or they could say "A few days? Not serious enough to bother." Guess we just wait and see.
Strangely, despite the extra work it will mean, I'm glad NaNo is soon. Between sickness and work and my social life (or lack there-of), life has just been rather blah lately. Not horrible (there are so many people who have it so much worse) and not great. Just...there. NaNo is like this little island of happiness for me, where I get to have a purpose for a month. Even if I don't reach my goal. Even if I never finish a novel. Even if my job sucks. I get to be a writer, for just a little while.
I look forward to November.
Red Alert! Red Alert!
Oct. 28th, 2004 01:43 pmHomework Attack! Goodness... why is it that everything has to always fall at once. Say hello lab presentation, group projects for Children's Lit and Language Arts/Social Studies methods. Say hello argumentitive piece and writer's research project for Advanced writing. Say goodbye life.
Oh yeah... Halloween... and I think one of my friends is attempting to set me up with someone... not a very welcome thought right now. Or, if he isn't trying, he's at least managed to get some random one of his friends who I don't know to email me telling me how glad he is that he's going to meet me. Still not very welcome. Well... hopefully it'll just be me overreacting. I hate doing that, but at least that means there isn't really a problem.
Though, on the up side, my sister might be coming down on Saturday. She said she couldn't miss hanging out with everyone at the costume party. Needless to say (but I'll say anyway) I'm excited. I just hope it works out. It'd be easier if she had a car. lol.
The pain from the root canal went away, and my grades are looking better. Hmm.. praises. These should be first, not last on my list. There are a lot of really wonderful things going on (I almost said stuff... but that wouldn't be right, would it?) and I need to focus on them more. So, yay for medication!
Though I still say I should have taken the Vicaden... stupid classes...
Oh yeah... Halloween... and I think one of my friends is attempting to set me up with someone... not a very welcome thought right now. Or, if he isn't trying, he's at least managed to get some random one of his friends who I don't know to email me telling me how glad he is that he's going to meet me. Still not very welcome. Well... hopefully it'll just be me overreacting. I hate doing that, but at least that means there isn't really a problem.
Though, on the up side, my sister might be coming down on Saturday. She said she couldn't miss hanging out with everyone at the costume party. Needless to say (but I'll say anyway) I'm excited. I just hope it works out. It'd be easier if she had a car. lol.
The pain from the root canal went away, and my grades are looking better. Hmm.. praises. These should be first, not last on my list. There are a lot of really wonderful things going on (I almost said stuff... but that wouldn't be right, would it?) and I need to focus on them more. So, yay for medication!
Though I still say I should have taken the Vicaden... stupid classes...